The Swiss Registry for Rare Diseases has recently launched a website

A website for affected persons, professionals and researchers

The Swiss Rare Disease Registry (SRDR) collects information on people with a rare disease throughout Switzerland. The project aims to describe the prevalence of rare diseases in Switzerland, to promote research on rare diseases and to enable networking between affected persons and professionals. Important information about the SRDR and all necessary documents for a registration can be found on the website >>>